Monica Ensini - Free People Check with News, Pictures & Links



	Research David Expert on Secondment University Health Peter European Medicine Agency National Expert

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News

EURORDIS - La voz de los Pacientes con Enfermedades Raras ...

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Los Registros de Pacientes de Enfermedades Raras son poderosos instrumentos económicos para mejorar la calidad global de la asistencia, calidad de vida y la supervivencia de los pacientes” explica Monica Ensini, directora científica de EURORDIS.

En busca del mapa completo de las enfermedades raras - CCM ...

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El resto de investigadores que han participado en la rueda de prensa -Monica Ensini (Eurordis, Francia), Hugh Dawkins (Department of Health of Western, Australia), Franz Schaefer (Heidelberg University Medical Centre, Alemania), Hanns Lochmüller (Newcastel upon Tyne, Reino Unido), Olaf Riess (Universtiy of Tubingen, Alemania) e Ivo Gut (Centro Nacional de Análisis Genómico, España)-, han ...

Care and Trial Site Registry

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If you have questions about MYO-SEQ or would like to participate, please contact Monica Ensini (.uk) The CTSR has proven here quite ...

News

www.eurenomics.eu

EURenOmics aims to predict the disease course, develop novel tools for more accurate diagnoses and new and better therapies for rare kidney diseases.

Telephone & Addresses

Monica Ensini, New York, US, W 113th St, Apt 3H

View Monica's social profiles and photos on Facebook, MySpace, and +40 Networks.

Monica Ensini, New York, US, W 113th St, Apt 6K

View Monica's social profiles and photos on Facebook, MySpace, and +40 Networks.

Network Profiles

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LinkedIn: Monica Ensini | LinkedIn

Monica Ensini. National Expert on Secondment at European Medicine Agency. Località Londra, Regno Unito Settore Ricerca

LinkedIn: Monica Ensini - Policy and Programme Officer ...

View Monica Ensini’s profile on LinkedIn, the world's largest professional community. Monica has 11 jobs listed on their profile. See the complete profile on LinkedIn and discover Monica’s connections and jobs at similar companies.

LinkedIn: Monica Ensini | LinkedIn

Member of the Committee for Advanced Therapies (CAT) at the European Medicine Agency (EMA) as patient representative RD-Connect: an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research.

Monica Ensini | National Expert on Secondment at European ...

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Check out professional insights posted by Monica Ensini, National Expert on Secondment at European Medicine Agency

Interests

Induction of the LIM homeobox gene Lmx1 by WNT6a Cell

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USA. †,‡. ,. Monica Ensini. x. Monica Ensini. Search for articles by this author ...

Business Profiles

Researchgate: Monica Ensini

Private Homepages

Monica Ensini - TREAT-NMD

treat-nmd.org

TREAT-NMD. Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world

Projects

RD-Connect - Centre for Research Ethics & Bioethics (CRB) - Uppsala...

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RD-Connect

Books & Literature

Publications by Dr Monica Ensini - ePrints - Newcastle University

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Dr Monica Ensini Professor Annemieke Aartsma-Rus: Stakeholder cooperation to overcome challenges in orphan medicine development: the example of Duchenne muscular dystrophy: 2016: Dr Stephen Lynn Dr Monica Ensini Dr Mojgan Reza Professor Hanns Lochmuller

The Public Shaping of Medical Research: Patient Associations, Health M

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Patient organizations and social health movements offer one of the most important and illuminating examples of civil society engagement and participation in sci

The Public Shaping of Medical Research: Patient Associations, Health ...

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Monica Ensini holdsa PhD in Neurobiology obtained from the University ofPisa and Scuola Normale Superiore of Pisa, Italy. During her postdoctoral training at ...

Scientific Publications

Sequential targeted exome sequencing of …

pubmed.ncbi.nlm.nih.gov

Ana Töpf 1 , Katherine Johnson 1 2 , Adam Bates 1 , Lauren Phillips 1 , Katherine R Chao 3 4 , Eleina M England 3 4 , Kristen M Laricchia 3 4 , Thomas Mullen 3 4 , Elise Valkanas 3 4 , Liwen Xu 3 4 , Marta Bertoli 1 5 , Alison Blain 1 , Ana B Casasús 1 , Jennifer Duff 1 , Magdalena Mroczek 1 , Sabine Specht 1 , Monkol Lek , Monica Ensini 1 7 , Daniel G MacArthur , MYO-SEQ ...

The public shaping of medical research : patient associations, health...

www.ncbi.nlm.nih.gov

Catalog of books, journals, and audiovisuals at the National Library of Medicine.

EPIRARE survey on activities and needs of rare disease registries in...

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Orphanet Journal of Rare Diseases Orphanet Journal of Rare Diseases main menu. About; Articles; Submission Guidelines; Volume 7 Supplement Monica Ensini 3 …

Publications

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Making randomised trials more efficient : report of …

core.ac.uk

Acknowledgments We are grateful for the contributions of Monica Ensini, Michela Guglieri, Peter Holding, Lynn McKenzie, Ken Snowden, and David Torgerson. The Edinburgh workshop was funded by the Network of MRC Hubs for Trials Methodology Research and the Health Services Research Unit at the University of Aberdeen.

The EuroBioBank Network: 10 years of hands-on experience of...

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PubFacts seeks to make the world's scientific research easy to locate, access, and collaborate on.

The public shaping of medical research : patient associations, health...

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Diesen Titel erhalten Sie in einer Bibliothek! The public shaping of medical research : patient associations, health movements and biomedicine. [Peter Wehling;...

Oalib search

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Frédéric Causeret,Monica Ensini,Anne Teissier,Nicoletta Kessaris,William D. Richardson,Thibaut Lucas de Couville,Alessandra Pierani PLOS ONE ...

Video & Audio

Video Statement of Monica Ensini - SIP …

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· Monica Ensini from DG Reasearch talked about research and its impact in the Horizon programme. At SIP, we will aim to direct the benefits of research to reduce the #impactofpain in …

Reports & Statements

The EuroBioBank Network: 10 years of hands-on experience of...

www.nature.com

Policy

Sequential targeted exome sequencing of patients affected by...

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· Monica Ensini PhD. Present address: Directorate-General for Research and Innovation, Directorate E, Unit E2 Combatting Diseases, Brussels, Belgium. Daniel G. MacArthur PhD.

fondos europeos – mpspapas

mpspapas.wordpress.com

Monica Ensini (EURORDIS, Paris Francia) presentará la carga de ser afectados por una enfermedad rara, la enfermedad desde el punto de vista de los pacientes y describira la participación de los pacientes y de las organizaciones en las actividades de investigación.