Leanne Preuss Free People Check 

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Blandford boy 'only one' with genetic disorder - BBC News

www.bbc.com
A two-year-old boy from Dorset is thought to be the only person in the world diagnosed with a rare genetic disorder.

Sanfilippo syndrome boy Jack Baird trials new drug - BBC News

www.bbc.co.uk
A four-year-old boy from Sunderland is the first child to trial a new treatment for a rare inherited disease at Manchester Children's Hospital.
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