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New UBC journalism project aims to raise awareness about rare...
globalnews.ca
The University of British Columbia is trying to highlight the fact Canada falls behind many other developed countries in helping people with rare diseases.
Who should pay for expensive medical treatment? - The Globe and Mail
www.theglobeandmail.com
There’s a growing number of new drugs for rare diseases. But the bad news is that these ‘orphan drugs’ come with a high price tag
Why Canada needs a clear policy on orphan drugs - The Globe and Mail
www.theglobeandmail.com
Many patients with rare conditions see access to so-called orphan drugs as a right, no matter what the cost. But can the health-care system bear the cost?
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