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Horley mother's plea to allow ‘life-saving’ drug that could prevent...
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The drug, Orkambi, is currently only provided to Cystic Fibrosis patients by the NHS on
Boy With Cystic Fibrosis Denied Life-Changing Drug 'Because Of The...
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Joe Barnes, 14, is just one of around 50% of CF sufferers who could benefit from Orkambi but it costs £104,000 per patient
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